My Autoimmune Disease is Getting on My Nerves… Literally

Photo by Matheus Ferrero on Unsplash

I had a nerve conduction test with my new neurologist yesterday. The test was to see if the numbness, burning, and tingling in my hands is because of carpal tunnel. I was referred by my old rheumatologist.

I liked Dr. Z instantly. She is straight to the point, but really nice. Mike’s been seeing her, so I was already familiar with her and right at ease. Still, I was a bit nervous. Since my old rheumatologist referred me back in April, my symptoms have progressed.

  • the tip of my right index finger has a constant burning sensation
  • the area beneath my thumb on my left palm goes into spasms
  • my feet now get burning and tingling sensations

I had a feeling I wasn’t dealing with carpal tunnel.

During the test, Dr. Z and I chatted about my symptoms, my autoimmune disease, and which doctors I’ve seen. Even though she can seem brisk because she gets right down to things, I found her very warm and personable.

When the test was over, she explained how it worked. Basically, the computer measures how long it takes the electric stimulation to get from Point A to Point B. She showed me the normal ranges and where mine are: normal.

The good news is, she said I don’t have carpal tunnel.

The bad news is, she said it’s likely my autoimmune disease attacking my nerves.

In further good news, Dr. Z said there’s no nerve damage yet. She only tested my hands, and told me that if I’m still having the sensations in my feet in four weeks, to come back. (Since it’s a new symptom, she prefers to wait another month before testing.)

Next week I see my new rheumatologist. I really hope she can put these puzzle pieces together; neither bladder inflammation nor nervous system problems are really a UCTD thing. They’re more of a Lupus thing, and since Dr. S had said my UCTD could be pre-Lupus, I’m a little concerned.

Now that my joint pain is under control and I’m not bedridden or dependent on Mike to help me get dressed, I’d really like to address these other symptoms. I just hope that my new rheumatologist is willing to figure this out with me.

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Elizabeth Barone

Elizabeth Barone is an American novelist who writes contemporary romance and suspense starring strong belles who chose a different path. Her debut novel Sade on the Wall was a quarterfinalist in the 2012 Amazon Breakthrough Novel Award contest. She is the author of the South of Forever series and several other books.

When not writing, Elizabeth is very busy getting her latest fix of Yankee Candle, spicy Doritos chips, or whatever TV show she’s currently binging.
Elizabeth lives in northwestern Connecticut with her husband, a feisty little cat, and too many books.

2 thoughts on “My Autoimmune Disease is Getting on My Nerves… Literally”

  1. It’s such a difficult think to pinpoint and ‘diagnose’, isn’t it? I was told carpal tunnel a while ago with the tingling in my hands but also my feet, then maybe AI, but nothing quite adds up to one thing in particular, there’s no black and white diagnosis and therefore no solid treatment. I really do wish you all the best with the new rheumatologist as I’m really pleased to read your joint pains are being managed a little better, so hopefully they’ll be able to progress things a little more for you with the remaining issues.
    Caz x

    1. Hey Caz! It really is difficult. Even rheumatologists don’t know everything about these diseases… They’re definitely interesting, to say the least. Thank you for stopping by and for the well wishes. 💜

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