Flareup 15, Liz 3

I finally got my referral. I had to jump through hoops to get it, but I got it.

I had to get up early this morning to call a client, so I figured I’d also call my health insurance company for a list of rheumatologists at Yale. I called them expecting like five, and the representative I spoke to pulled up about thirty rheumatologists. She gave me three names and numbers, and I immediately called my doctor’s office to have them send the referral. I asked if there was a way they could figure out who I could see the soonest and fax everything to them, but Ruth, the receptionist I spoke to, said they could only fax it over and tell them to get me in as soon as possible. I said that was fine, did a quick eenie-meanie-minie-mo, and gave her one of the rheumatologists.

Ruth called me back a short time later to tell me that that particular rheumatologist only does rounds at Yale, and that she has a private practice in Guilford. She said that she could still fax my records over if I wanted. Since I have no idea where Guilford is and don’t want to travel that far, I said no. Ruth said that a lot of the doctors at Yale only do rounds, and that I’d have to research and find out which ones actually practiced there.

“Got ya,” I said. She started to wrap up the conversation. I sighed and took a deep breath. “Okay, here’s my situation. I got some blood work done and Dr. Mongelluzzo thought it might be Lupus, so he wanted me to see Dr. Cooper. Because I’d seen another doctor at her office a year ago, her office wouldn’t let me see her and said I’d have to have your office verify. If there is any way — if it would be easier than me trying to track down another rheumatologist — if there is any way you could get me in to see Dr. Cooper, because I really don’t want to wait. I’m having a flareup and all kinds of symptoms, and I really don’t want to wait much longer. I need to see someone as soon as possible. So if there is any way you could get me in to see Dr. Cooper…”

“I understand. I’ll call right now,” Ruth said.

“Thank you. Thank you so much,” I said.

“I’ll call you right back,” Ruth said, and we hung up.

Finally, I thought.

She called me back about thirty minutes later, and said that Dr. Cooper’s office wouldn’t budge. “I found a rheumatologist at Yale though, and I’m sending your referral over now.” She gave me the doctor’s name, address, and phone number.

“Thank you so much,” I said, and really meant it. I’m pissed that Dr. Cooper’s office gave her a hard time, especially when they had told me I needed to have my doctor’s office verify, but as long as I’m going to see someone who is not Dr. Memet, I guess I don’t care at this point. It is absolute bullshit, though. I was going to call my health insurance company and lodge a complaint this afternoon, but I forgot. Come Monday, though, I think I will. They cannot tell me that I have to see a specific doctor. I have every right to see the doctor that I want to see. Fuck that.

I’m glad that I pushed a little harder with Ruth this morning, though. She was nice, but she’s like all receptionists: busy. I’m glad that I stood up for myself, and even more glad that she was understanding and helped me out.

In the meantime, the Great Flareup of November-December 2010 continues. The rash on my chin is definitely bigger. I’m bone tired, even though I got about eight hours of sleep. All of my joints have been aching all day, and my neck and left shoulder/elbow are sore as hell. Sometimes the aching stops, but it’s pretty much been an all day thing. I’ve also been having a hard time going to the bathroom again. It pretty much takes all day for the coffee to kick in. Well, except today; I got a horrible stomach ache this morning, ran into the bathroom, and spent about a half hour with near-diarrhea

Don’t you just love hearing about my sicky woes, and my lack of filter? I bet my new rheumatologist will love it, too.

Anyway, I had a dentist appointment early this afternoon, and when I got home, I laid down. I basically cat-napped. It wasn’t too refreshing. I woke up when someone ran up the stairs to our apartment on the third floor, banged on the door, and then went back down the stairs a few seconds later. Thanks, mystery person. When I finally gave up and got out of bed, my neck was sore. I had a cigarette, ate some cereal, and then laid back down to read… but I couldn’t keep my eyes open. I’m just drained. It took me about fifteen minutes to get myself out of bed. I would have just gone to bed for the night, but I had to get Mike up for nine so he could go to work.

I want to try to do some outlining and character work for the rewrite I’m doing of my first novel, The Praying Mantis Experiment, and maybe some writing, too, but I’m not sure how long I’ll last. I was supposed to go out tonight, too, but I didn’t. I don’t have money to go out anyway, but I also feel too shitty to go out. I’d just be a fun suck, sitting while I sip water and yawn, rubbing my shoulder and neck and knees and back.

Plus, you never know if I’ll have to run to the bathroom again. My gastrointestinal system is so fucked up lately, I never know what it’s going to do. Staying home is a lot safer.

This is totally my theme song right now: “I Survive” by Lacuna Coil

Reason #9,919 why the medical system needs a punch in the face

My doctor’s office finally called me back this morning. The receptionist I talked to said she talked to Deanna — the other PA — and that Deanna said I had to see Dr. Memet, because Dr. Cooper doesn’t take care of skin rashes.

“No,” I said. “I’m not seeing Dr. Memet. When I saw her a year ago, she basically blew me off, and after only seeing me once, told me to see a psychiatrist. So I am absolutely not seeing her again.”

“Well, Dr. Cooper doesn’t take care of skin rashes,” the receptionist repeated.

“Okay,” I said. “Then can I see someone at Yale?”

“We don’t know who your insurance covers, so you’ll have to call and find out.”

“Okay,” I said. “So… Do you guys have a number for them?”

“No, you’ll have to call the information line.”

“Well,” I said. “Thanks.” For nothing, I added in my head. We hung up.

What. The. Fuck.

First of all, I don’t see Deanna normally, so why is she calling the shots? Second of all, when did this get to be all about the rash on my face? Wasn’t I referred to see Dr. Cooper in the first place because of all my crazy blood work? And third of all, why can’t they just call Yale and at least get me a number? Don’t I need a referral from them anyway?

I pretty much exploded into tears when I got off the phone. I tried to go outside for a cigarette without Mike seeing me cry, but he knows me way too well. I cried this time out of pure anger. (Yes, that’s right. Big bad Liz cries when she gets mad.)

But you know what? Fine. I’ll just go to Yale. Sandy has been trying to get me to go to Yale since this whole mess started in the first place. I’m just going to call my insurance company, get a list of rheumatologists at Yale who take my insurance, and call my apparently stupid doctor’s office back and tell them to refer me to the one I can get into the fastest.

It really is a fend-for-yourself kind of world.

PS: This is how I feel about it:

Way beyond my reach

I wish the holidays were over already. Aside from being super stressed out about projects for clients, and worrying like crazy about Popi, I’m now barely going to see Mike on Christmas Eve and Christmas Day.

In years past, Toys R Us closed at like 6 on Christmas Eve and wasn’t open at all on Christmas Day. This year, they’re still closed on Christmas Day, but they’re open until 8 on Christmas Eve. Scratch that, as of today; Corporate sent an email at the last possible fucking minute and told everyone that they’d be open until 9.

What. The. Fuck.

Why does this matter?

Let me back up. Initially, Mike was scheduled until 8. He was trying to find someone to switch with so he could come over my house and have dinner with Noni, Popi, Biz Noni, Mom, Dad, Lauren, Aunt Wendy, Uncle Lonny, and I, but couldn’t, so he was going to see if he could just leave early because they will probably be dead. Now that they’re going to be open until 9, his boss asked him to stay until they close.

And he agreed.

Trust me when I say he already knows how pissed I am about this.

I understand why he’s doing it. Right now, he’s on great terms with his boss and the district manager, and he really wants to keep those relationships positive in case any higher positions open up. I get that. But still, I had a perfect picture of how Christmas would go, and now it’s just not going to be like that. I can’t help but be selfish and want to have things go my way. So much has not gone my way these last couple of years: my own health, my grandfather’s health, my living situation… I know I should just shut the fuck up and be grateful for what I’ve got. I know that. So many other people have it worse. It just feels like I’ve had a shitty line of luck lately and I guess I was depending on the holidays to be perfect so it could all be better.

To make things worse, I have a huge project deadline for the end of the month that can bleed into the first week of January because of some crazy server issues, but the deadline is making me nauseous because with all of the holiday shit going on, I have barely had time to work on it. Add a whole lot of lack of motivation, and I’m pretty fucked. Fuck you, depression. You’re such a greedy asshole.

So it’s no wonder that I’ve (sort of) picked up smoking again. I made sure not to buy myself a lighter tonight when I picked up a pack of Marlboro Lights. I’ve only had one so far. I don’t feel like I need one now, which is good, I guess. Right now, it’s either smoke or kill someone. Or run away to Florida.

It’s hard to get in the holiday spirit when so much shit is all fucked up. I miss being a little kid, and having only one worry this time of year: Santa not knowing that I really want a Gigapet, or whatever toy. (One year, I asked him every night before bed during this season to bring me a Reeses Peanut Butter Cup. No lie. My love of Reeses started early.)

This year, Santa, all I want is to feel better. Actually, scratch that. I just want everything to go back to the way it was in mid November, when everything was better. When Daddy didn’t lash out every five seconds because he is hurting so badly inside. When I would go to the Barnes and Noble Cafe every afternoon to write with a Pumpkin Spice Latte at my side. When we looked forward to Thanksgiving and Christmas, not a care in the world. When I thought Popi might just have arthritis or a sciatic nerve problem, or something FIXABLE, dammit.

Right now, it feels like nothing in my life is fixable. I feel like I have no friends. I feel like I can’t rant too much to Mike because he is already stressed out enough and I know that by whining that he has to work late tomorrow night, I’m only making it worse. I feel like I have to walk on eggshells around my whole family, because I don’t want to say out loud that shit, I don’t believe in god so I have no fucking clue where my grandfather is going to go when he dies.

Fuck.

There it is, guys. There it fucking is.

Friends

I’ve always had a hard time making and hanging onto friends. I’m not sure why. I’m (perhaps stupidly) the kind of person who will bend over backward for those I care about — and often for people I barely know. I love pretty much everyone, unless you’re a douchebag. Then I won’t waste my time.

I consider myself a warm, honest, open, and friendly person, albeit a little (lot) shy. I’m sure when I finally get to meet some of my favorite bloggy people, I will most likely spend the first hour or two quietly taking in everything before I say much of anything. During outings, people say I’m quiet but that I’m “something.”

I can be witty. I like to do stuff like rent random movies, spend a night in, go out for karaoke, watch cheesy shows like Instant Star and enjoy it, and I can keep secrets. I can also tell my own secrets, if we’re close enough.

I think I’m a pretty good friend, if only I had more than like two.

There’s Jillian, whom I worked with at FYE “back in the day.” We became fast friends. We could be best friends. We just don’t hang out enough. She recently moved to New York and then moved back, which helped with the hanging out. We have a lot of fun when we’re together. I’ve never had a reason not to like her. She loves Stephen King and drools over Julian McMahon. There are always good times to be had when Jillian and I get together. She gets me, and I can be completely myself around her. (Read: totally goofy and insane.)

Then there are my friends from high school, the ones I hung out with a lot the first year or so after graduation. Now? We barely speak. There’s Joe, whom I went to dinner with a month or so ago. There’s John, who I haven’t seen in over a year (but we still talk on Facebook occasionally). These two stick out the most, only because I developed friendships with them beyond just hanging out and laughing. The problem with them is that we’re all freaking busy. They’re both in university, living their own lives. So much time has gone by that we’ve become old acquaintances. Ghosts who still appreciate each other but have too much to do to make the time to get together.

Then there’s Nikki. Again with the busy. She goes to Southern, and while I went there we saw a lot more of each other. Again, we could be best friends, but for some reason it doesn’t go all the way. We have lots of common interests, but live different lives. I can talk to Nikki about ANYTHING, and she never judges me.

Michael, Lauren (my sister), and my Aunt Rikki are the closest people I have. They aren’t friends in the sense that they aren’t related to me or madly in love with me (because of voodoo), though. And Mike? Is not a girl.

I had a best friend, once. I thought I could tell this person anything, could trust her completely. Over and over, she demonstrated that no, she could not be trusted. I kept giving her chance after chance, and that’s probably where I went wrong. I’m a sucker, because she was my only truly close friend and most likely knew that no matter what she did, I would always forgive her.

And yet, in the aftermath of the biggest deception she has ever pulled on me, I still find myself missing her. I have been dreaming about her. (And not in a dirty way, so you guys can all stop the hawt girlsex fantasies now.) Sometimes, I admittedly even pull up her Facebook to see her statuses to make sure she is okay. And why? I don’t know. Because I truly, truly love her, even after she has hurt me time and again.

Even after all of the bullshit, I still want to call her up, tell her I miss her, and get together for a rented movie. Is it because of the history? Is it because we went through the highest of the highs and the lowest of the lows at one time together? I don’t even feel this way about my ex-boyfriend, who I thought was my first love back when I dated him. (I know now that Michael is that first, true love.) I shared a lot with that asshole, and even though I occasionally wonder how he is doing (even though he is a big, fat, wet douchebag), it doesn’t go much beyond that. I definitely don’t dream about him, and he definitely doesn’t occupy my thoughts all day!

A few weeks ago, I told this girl (my old best friend) that I really, truly love her and her kids and would do anything for them. Part of me feels guilty, because that anything doesn’t include being walked all over, talked about behind my back, and having deep, personal things about me shared without my knowledge or consent. I was so angry when I first discovered her treachery, that I couldn’t even think about it without shaking. Mainly I was angry because she would most certainly not want the same thing done to her. Only three people on this Earth knew before she went flapping her mouth, and I only found out that she had told someone because, hello, I found it on her blog. (So not only was she telling people she and I knew, but it was also publicly all over the fucking internet. BEA-UTIFUL.)

Getting pissed all over again.

AND I still miss her.

Am I a masochist or what?

I think part of the reason I kept going back to her was because, honestly, she was my only girl friend. She was the only person I have ever been that close to. We shared so much in the six or more years we’ve been friends that it feels like I’ve lost a limb. And yet, with everything else in my world slipping through my fingers, I can’t allow anyone to abuse me. I can’t allow her to continue to treat me like nothing while I do everything for her without a second thought.

And believe me, I have tried explaining to her how I feel over and over again. Even when I told her that I don’t want to talk to her anymore because of what she did, she still didn’t get it. She said something to the effect of, “There’s more to the story but you wouldn’t want to hear it.” So, there’s more to the story involving her telling people something I wouldn’t want them to know? Something SHE wouldn’t want them to know? I don’t care what the “story” is — she told something about me that she knew I didn’t want anyone to know. Hell, SHE didn’t even want to talk about it ever again! So, hypocrisy is the name of the game here, and since I caught her out, she still had to try and justify it. There IS no justification; had I done the same to her, she would never forgive me. I know exactly what happened and why she told who she told, and that makes it even more sickening.

BUT.

There’s no point in me wasting my time. I am sad because I have lost a friend. It would be nice to have this friendship now, when I most need someone who understands and knows me completely. It would be nice to be able to sit outside with her, drinking cold beer and chainsmoking, while I tell her how I’m feeling, how scared I am, how much I don’t want to lose my grandfather. It would be nice to spend part of the holidays with her and her kids, watch them open their gifts and the way their eyes sparkle.

The kids. Don’t even bring me to the kids. I feel so guilty that I have stopped talking to her, because I also love those kids. But, as horrible as it sounds, I can’t be there for them, doing everything for them, while she walks all over me. I honestly can’t even stand to be around her. It would make me sick to my stomach to look in the face of someone I once trusted, someone who told a personal secret just to impress a guy.

Because that’s what it comes down to — impressing a guy who did horrible things to her over and over. I just can’t wrap my head around it.

So, at the same time I grieve the loss of my good health, and the suffering of and impending loss of my grandfather, I grieve the loss of a sisterhood.

A friend.