Finally, some news! And, it’s relatively good (or at least better than a diagnosis of kidney failure)!
After tons of tests, the team at Yale has determined that Konner is anemic and has protein in his urine. They determined that the kidney function is good, but are still uncertain as to why there is a cloud of blood in his bladder, and why it’s gotten bigger. However, he is showing no signs of kidney failure. They are thinking that he might have an autoimmune disease, and are doing blood tests to figure out which one, if any.
Sandy also told me that she, Ryan, and Konner are probably going to be at Yale for at least another couple of days. I asked about treatment, and she said they are continuing the course of antibiotics every four hours, and are putting him on an iron-rich diet for the anemia.
I am relieved beyond words. I hate that my little man might have an autoimmune disease, because hi! I know how much of a pain in the ass they can be, but am so, so glad that our worst fears have been ruled out. Yale has, once again, proved to be amazing.
I think the not knowing was driving us all crazy. My regular readers know that I am horribly impatient, and that not knowing is pretty much my Achilles’ heel. Of course, I cannot even imagine what it has been like for Sandy and Ryan, but I know all too well how frustrating it is to not have answers. Now that we are on a path toward getting more answers, and now that a treatment plan is in place, I think we are all mutually relieved.
Thank you all so much for your positive thoughts and prayers. I got all of this news via texts from Sandy, so I will be sure to pass on your messages as soon as I talk to her on the phone. Please continue to keep Konner in your thoughts and prayers.
