An update on Noni: Test results

For most of my life, I’ve always poured my heart out into my journal. When I started blogging, I kept that same what-I-feel-is-what-I’m-writing habit. I even drifted completely away from my paper journal, and wrote down every event here.

Lately, I can’t seem to get the words down.

I’ve known for almost a week now what Noni’s tests came back with, and I just couldn’t write about it. Part of it was that I wanted to wait until my sister knew (because she’s been at school, so Mom wanted to tell her face-to-face), but I couldn’t even write a password-protected or private post. It’s hard to even talk about it. It’s as if my mind just won’t let the message across to my mouth or fingers.

But because I’ve always felt better after writing something out, I still feel the need to write about this. But the words don’t come easily.

On Tuesday, the 12th, Noni found out that her cancer is aggressive. It is not in her organs, but it is in her bones: her hip and shoulder blade. Her doctors ordered another biopsy of the tumor in her arm pit, and are testing it to see if it responds to estrogen-based treatments and a couple of other kinds of new treatment. If it does respond, they’re going to hold off on the surgery to remove the tumor so that they can use it as a way to measure progress.

She told me flat out that she just wants everyone to be positive, because she wants to see her grandchildren get old. I’m kind of glad she couldn’t see my face (because of the way the light was coming in through the window), because I have no idea how my face looked. I’ve never been good at controlling my facial expressions; everyone I know says my face is an open book.

On Friday, when my mom told Lauren about the test results, I also found out that they’re considering this stage four. To be completely honest, I had been afraid to ask Noni when I talked to her. I asked her other things, but completely avoided asking THE QUESTION.

This feels like Popi, all over again. My family just went through this. We found out there was cancer. We waited for test results. We hoped that things weren’t too bad. We got test results, and found out that it was as bad as bad can be. And still, we hoped. Or at least, everyone else did; I just walked around in silent denial. I did not think that cancer would take away my grandfather.

Now, I’m reminded all too much of that stoic denial, and I don’t know how to feel. My mind wants to do three things, all at once: be in denial, hope for a good outcome, and scream. Mostly, it just goes blank, something I never thought it could do. Everything is black and white: Food, sleep, don’t think about the bad stuff.

The C word again

I walked into the house, carrying a soda, a Gatorade, and a bag of new clothes, talking to Mike about school systems that suck and make parents of special needs children more stressed than they need to be. The bad news that I’d just heard weighed heavily on me, and all I could do was shake my head and rant about how ridiculous it was that a school does not understand special needs childrens’ problems.

We spent a few minutes saying hello to my mom and sister, and then my mom looked at me and motioned for me to sit down. In barely above a whisper, she said she had to tell me something. (She has a sinus infection too, which always means no voice for her.)

“Not more bad news,” I said, joking. Then I saw the look on her face, and I sat down.

“Noni found a lump on one of her lymph nodes, where she had the tumors removed from before,” Mom said. “She had a biopsy, and…”

I barely heard the rest, because I didn’t need to. “No,” I choked, and buried my face in my hands.

Not again, not again, not again.

My grandmother is a breast cancer survivor. Several years ago, when Popi was still healthy, was still working, she was diagnosed. She went into chemotherapy. It was hard, but she beat it. In fact, I barely remember the details of the day to day stuff, because I was so young, and they caught it so early. In my memory, it was over before it really began. I didn’t have time to be scared. I was too young to be scared.

Cancer has already taken away one of my grandparents. Even though there’s no reason to jump to conclusions here, I have already been fighting the fear that the people I love are slipping away. It’s been eight months since we lost Popi. In those eight months, the pain has not even slightly diminished. I have realized that it will never be any easier without him. Each event or holiday will always make me think, We’re doing this without Popi. (Hell, sometimes I even think, Oh cool, I’ll get to see Popi there. It’s like my brain is handicapped.)

Noni is going to have a scan to make sure the cancer isn’t anywhere else, so that they can get an idea of how far it has or hasn’t advanced. Then they will start treatment. All I can think of is that, in the beginning, things looked really optimistic for Popi. I’m trying not to think like that, but it’s nearly impossible not to. The fear of losing the remaining half of my NoniandPopi is crippling.

I hope my dad is okay. He’s never one to say much. He didn’t say much when we lost Popi, and he didn’t say much when we lost Brian (who was his best friend years ago). Then again, I haven’t said much (out loud) either.

I hope Biz Noni is okay, too. She’s eighty-seven. Noni is her daughter.

I can’t believe this is happening again.

Shit that pisses me off: Weird dreams and chronic pain edition

I’ve always wanted to make a list of the shit that’s currently pissing me off, but never did because it somehow feels douche-y. Still, sometimes you just need to rant, so here we are.

I don’t understand why the new year starts in January. It’s confusing. It should start in March. Hear me out. We get winter starting at the end of the year, and it overlaps into the beginning of the year. So, if we want to refer to the winter of a particular year, how do we do that? If I say “Winter 2011,” am I talking about the winter in the beginning of the year, or the winter at the end of the year?

Our cats have been living together for over a year now and the fat one is still traumatizing my little one. After I spent the whole morning yesterday cleaning up puke, piss, and shit because Apollo wouldn’t let Squirt leave the corner to use the litter box, I felt like wringing his little neck. I told my mom when she got home from work. We said how we wished that the dining room door closed, and a little while later she rigged the dining room door with a bungee cord so that he can’t get in. She’s a smart cookie.

Since Mom rigged the door and we’ve been keeping the cats separated, I’ve seen a complete change in Squirt. She’s much more relaxed. She even purred at a normal volume last night when I was petting her. I also saw her use the litter box for the first time in a year without a hassle.

Apparently, pulling the bungee cord around the doorknob is too hard for my dad and sister, because they keep complaining about it. My dad also keeps complaining that this isn’t going to help them get along. They are never going to get along. It’s been over a year. If they were going to get along, they would have already started to. They are both the type of cat that has to be a single pet. Again, let me remind you that I cleaned up puke, piss, and shit all morning, and that every night they fight right over my head because her food is right near the head of my bed, and he doesn’t let her eat. If keeping the peace in the house means that we have to loop a bungee cord around the doorknob every time we go in and out, who cares? But I have a feeling that when I leave for Kaylene’s birthday party and then come home, the dining room door is going to be open and it’s going to be the same shit all over again because no one cares.

I don’t understand why we can’t all just be consistent. Aside from this, I’m the only one who ever punishes him for going after her. Mom puts him in the bathroom sometimes, but I’m the only one who sprays him with the water bottle and tries to teach him to listen to the word “NO.” It’s so frustrating.

I’m sick of being broke. I want to not worry about gas and lunch. I want to go out with friends I haven’t seen in a long time. I want friends who stopped inviting me out because I’m always broke to invite me out again. I want to pay off my bills and the debt that’s been stacking up. I want to start saving money for a place with Mike. I want to fix my car up so that it’s in top condition. I want to buy birthday presents for the birthdays I’ve missed so far: Kaylene’s, Lauren’s, and Mike’s mom’s. I cannot wait until March 4th, when I get my first full check.

I wish some of my so-called friends would get serious about our friendship. We make plans, they break them. I try to get in touch, they don’t call me back. I need someone to talk to, they just talk about themselves. Something important happens to them, they don’t tell me. (But when something bad happens to them, oh, you can bet they’re calling or texting or BBMing or emailing me to cry or vent about it!) I can honestly only think of one friend right now who has always been serious about our friendship. That friend? Is a guy. Maybe I am approaching this whole friendship thing wrong, and need to only be friends with guys.

I dreamed about SEO last night, and kept waking up over and over thinking, “I’ve got to remember that!”, only to forget two seconds later. The night before, I dreamed about spiders crawling on me. Before these last two nights, I had a couple of good nights of sleep, but before that I wasn’t really sleeping at all. Sleep hates me. I think my body hates me. I don’t know why I dreamed about SEO last night. It’s not like I had to work today! Maybe I’m stressing out a little about work. I do feel some pressure, but I didn’t think it was bothering me that much. Ugh.

My neck and shoulders have been stiff and sore for a week now, and my lower back has been aching for three or four days. All of my joints have been joining this aching chorus, too. I guess it’s stress, but it’s driving me crazy. There’s only so much Extra Strength Tylenol I can take before I have to give it a rest. Plus, really, no one likes being in pain all the time.

I guess that’s it for now. I need to go get ready for my goddaughter’s birthday party. She turned six on the ninth. Time really flies!

What’s really pissing you off right now?

Be good to yourself so you can feel good on the inside

I had a bad day yesterday. It wasn’t the whole day that was bad, though. It was more like a bad moment. I got into a big fight with my sister, over something really stupid, and it wasn’t until after that I realized what was wrong. I was (and still am) anxious about next Tuesday’s appointment with my rheumatologist, and hadn’t had a cigarette in a couple of days. I’ve been sick with a sinus infection, so I haven’t been smoking, and the night before last, I decided to try to just quit. Apparently it’s easier when you accidentally quit.

The anxiety from both was affecting my self-esteem, so I was overly sensitive to some things she said, and overly sensitive after the fight itself. I was also super angry, for no reason. I was literally seconds away from hitting her. I’ve never wanted to hit someone like that. Because I didn’t want to hit my own sister (especially over shoes that I’d tripped over), I left the house and went to the gym instead.

We were both immature, but I was not proud of myself for letting my emotions get that out of control. You probably wouldn’t have been able to tell by looking at me, but it took every atom in me to refrain from slapping her. I am not an angry person. Sometimes I’m super impatient, yes, but I’m not angry — and I’m not violent.

I realized something important: In order to be good to others, and to feel good on the inside, you have to be good to yourself. We all have some kind of demon, whether it’s depression, chronic illness, or something else. It’s important to care about ourselves and do little things… like dressing up the outside, to feel better inside! Today I woke up, took a shower, dressed, and did my makeup — even though I didn’t have any plans to go anywhere.

Feel good on the outside, and you'll feel good on the inside

Feel good on the outside, and you'll feel good on the inside

Dress — Charlotte Russe, $10
V-neck tee — Forever 21, $3.80
Lace tights — Charlotte Russe, $2.99
Thigh-high socks — Charlotte Russe, $2.99
Boots — Charlotte Russe, $20
Bangles — Charlotte Russe, $4
Necklace — Target? I bought it a long time ago
Sanity — Priceless

I know I don’t look too excited in the picture, but I feel great.

I fucking love Bare Minerals.

I fucking love Bare Minerals.

I also used my new Bare Minerals makeup for the second time. I feel like this time I did it much better than the first. Dark circles and shiny forehead? Me? Don’t know what you’re talking about! (The eyeliner and mascara are Maybelline, I think.)

I bought a few skirts this weekend, as well. Since I don’t fit into jeans very well right now and refuse to buy another size up, I bought skirts (with stretchy bands), tights, and thigh-high socks so that I can wear them in this cold and still be warm. Just the small act of buying clothes I fit into makes me feel so good. I also bought a new bra, another size up, so now I don’t feel like I’m suffocating.

I’m still working on losing weight, yes, but now when it comes time to get dressed, I’m not seconds away from a breakdown because nothing fits. If you’re trying to lose weight, too, I found Elessa’s tips really helpful:

I especially find the tips on eating — such as imagining a line across your plate, and making your meal last twenty minutes — really helpful. I really love food, so when something is good, I will just swallow it down. I’ll have seconds and even thirds, whether I’m full or not. I also like the idea of getting a kids’ meal if you have to have fast food. We all know how much I love my Burger King cheeseburgers! And, I agree that you shouldn’t deprive yourself; if you’re having a craving, Elessa says to just have a little bit, instead of not at all and making yourself want it so bad that you overeat.

I don’t believe in New Year’s resolutions. I believe that every day is a fresh start. I’ve been trying to lose weight for a while. I’ll get serious for a bit, then fall back into old habits and complain about my clothes not fitting. I’m serious, this time. I’m creating new habits, and being good to myself. Anxiety can take a fucking hike.

How do you treat yourself?

2010 in 700 words

Mike and me, New Year's Eve (taken by Sandy)

Mike and me, New Year's Eve (taken by Sandy)

Last year was a lot of things. I’m not naive enough to believe that the year itself was evil, and that this year will make all of the bad of last year go away. I can, however, look back at the ups and downs, and try to take something from it. I can also admit that this was totally not my idea, and that I stole it from Jess.

I started off the year a university dropout, working two jobs, trying to figure out what I wanted in life and what was going on with my body, worried about my grandfather, and minus a good friend. I ended the year with a good idea of who I am and what I want for my career, a better picture of what might be going on with me, working one job, minus a grandfather, and plus a good friend. Life is very strange.

At the beginning of the year, I started rebuilding one of the most important relationships in my life. I am so grateful that Sandy and I were able to fix things.

Sandy and me, New Year's Eve (taken by Sandy)

Sandy and me, New Year's Eve (taken by Sandy)

I also gained about twenty pounds, thanks to a depression medication called Seroquel. As soon as I realized that was why I gained so much weight, I stopped taking it. I haven’t — knock on wood — felt the need to take medication for my depression since. I started working out, and also rediscovered softball.

In April, I got my second tattoo, to represent my family.

Because we didn’t know how much time Popi had left, we started seeing my two cousins, Mindy and Vinny, more often, even though we hadn’t seen either of them in a long time (both from different circumstances). It sucked that it took Popi being really sick to get everyone together again, but it made me so happy to have all of us together. I know it made him really happy, too.

Lauren, me, Mindy, and Vinny, July 2010

Lauren, me, Mindy, and Vinny, July 2010

Just a couple of weeks after we were all together, Popi took a turn for the worst… and we lost him on July 9th, 2010, early in the morning. I was dreaming that he was gone as my parents woke me up to tell my sister and me that he had passed. It still hurts, especially since my birthday and Christmas card from Noni were signed just from her. I would give anything for his name to be on those cards, too, for him to be here with us now, healthy.

Not long after Popi’s memorial service, Mike’s family lost their house, his mom and stepfather separated, and he had nowhere to go. So, he moved in with me, my parents, my sister, and our two cats. Our relationship has strengthened since he moved in, even though I had been afraid living together might be a bad thing.

In October, at New York Comic Con, I learned that my mystery autoimmune disease has severe physical limitations. Because I’d spent a day walking, I spent the next three or four days unable to walk without being in pain.

November was probably the weirdest month of all. My worst flareup ever began with weird itchiness all over and an even weirder rash on my face, I got my first rejection letter for a short story, my blood work came back all kinds of positive and my doctor referred me to a (third) rheumatologist because he thinks I have Lupus, and I wrote and finished the first draft of a 50,000+ word novel.

In December, I found out that I inherited migraines from my mom’s side of the family. It was only the third or fourth I’ve ever had, but it was by far the worst. I hope it’s a long, long time before I get another one.

December 2010

December 2010

I definitely went through a lot this past year. I’d like to say that I wouldn’t change any of it, that I wouldn’t be who I am without all that happened, and that I’m grateful for that kind of shaping, but I would give anything to have my Popi back. I also wouldn’t mind living without chronic illness and pain. I am, however, grateful for the good things that happened, because if there hadn’t been so much good, I wouldn’t have been able to cope with the bad.