Quoted on TODAY Show and Washington Post

via Unsplash

Sometimes something happens and you can feel that it’s A Big Deal—a milestone. Last night I found out through a couple people on Twitter that I’d been quoted in the media.

It’s super important to me that people with chronic illnesses have our voices heard, that we aren’t erased or romanticized. Seeing my words in the media—having my voice heard on this level—is surreal in a way that I can’t even explain. It’s also made me stop and think about a couple things.

I never knew I’d be an activist. Sure, I’ve always been passionate. (Just ask my parents and partner.) I’ve also long been shy and, for quite a while, lost my voice. It wasn’t until more recently that I’ve begun speaking out. I want awareness for people with chronic illnesses. I want able-bodied people to treat us better, to stop judging us by how we look or don’t look. I want better accessibility. (Yesterday I went to a restaurant and their ladies’ restroom barely fit me, never mind a wheelchair.) I want so very many things… and so I think I have to sit down and come up with some goals, focus my efforts a bit more than just sharing my story and speaking out when I come across something wrong. I want to do more.

It’s also made me stop and think about how much my words matter. As a writer, I think I’m maybe a bit more aware of the weight of my words. Seeing them in the media puts it into a whole different perspective, though. I’ve always strived to be myself on social media; I’m going to swear and share cat pics, but I’m also not going to join the mob with pitchforks when there’s a tweetstorm. I want to be professional but firm, serious but kind.

It’s truly surreal to see your words out in the wild, to know that they were on how many thousands of TV screens in an instant. My life hasn’t changed—I didn’t get an influx of followers or anything like that—but in 140 characters, I helped people see how that Cosmopolitan article was focusing on the wrong inspirational story. I’ve been part of the conversation for years, but I feel like this week, I was truly heard—along with so many others in the community.

Hey, I wonder if maybe now Washington Post will accept my article about opioids being a lifesaver for people with chronic pain. 😉